Sunday, February 8, 2015
half way through radiation therapy more or less
Friday I completed #9 out of 20 radiation therapy sessions, making me nearly half way through. So far it is going OK. The 4:30 time spot requires me to leave work by 3 since I have to travel both directions with rush hour traffic. Some days there are pile ups on the interstate and I worry that I left too late. This is why I had requested a morning time slot when I met with the nurse, with the doctor, and again when I met with the techinition. But as seems to be the case with this practice, it made no difference with the scheduling. I had to schedule a urology appointment in Marietta before I knew the time for my appointments with radiation therapy, so I asked for the last time slot of the day since I assumed my Gainesville Radiation appointments would be in the morning. Unfortunately that turned out to directly conflict with my radiation therapy appointments. So when I arrived for the first appointment I asked to reschedule on that day only (which would be this Friday). I was told they could not provide such special treatment that it would be unfair to the other patients. Instead I had to wait until 2 days prior to that appointment to see if it was possible to switch to a morning spot on that day. Fortunatly my primary care doc got Tricare approval for a different Urologist associated with Emory and located in Atlanta and I was able to get that appointment for the first appointment of the day at 8 AM so it should be possible to also make the radiation therapy appointment that same day in Gainesville GA. My experience with this practice leaves me wondering how they could possibly think they are giving me special treatment to the extent that they are disadvantaging others. Fortunately during my daily appointments I just have to walk in, wait often for a very long time but then walk back and position myself on the machine, remove appropriate clothing and lie still for about 20 minutes. The only people I interact with are the technitians and with them only during the time they adjust my position on the machine to make sure things are lined up exactly. So far things are going smoothly. The only side effect has been mild colitis/ileitis leading to occasional rather urgent diarrhea. This tends to happen toward the end of the week and weekend but the 2 days off seem to give my gut recovery time. Just in case I acquired a supply of depends... makes me feel very old. BUt i assume this will get worse week by week but resolve once the treatment is over. I also can feel a bit of tenderness in the area where the radiation is directed, again most noticable on Friday and Saturday. That is not so uncomfortable (at least so far) as to induce use of pain meds, and is sort of comforting in that it assures me that something seems to be having some sort of effect. Hopfully the effect that we want. The fatigue is not too bad. I am able to work daily and am making progress on a book chapter I am supposed to produce by April 1. I do tend to lose concentrating ability about 2:30 every day so I save at least half an hour's worth of little tasks to address in the last half hour before I depart for Gainesville. And I tend to spend my Saturday's napping most of the day in front of the TV, but I did that when I was getting chemo, too, and my brain was less clear. So... Like the colitis, I have been warned this may get worse as the month goes on but so far so good. 9 session down, 11 to go. Then back to the last half of chemo.